Philadelphia, Pennsylvania Sep 5, 2024 (Issuewire.com) - The National Alopecia Areata Foundations (NAAF) 2nd Annual Walk For Alopecia is coming to Philadelphia on Saturday, September 28, at Valley Forge National Park, 1400 N. Outer Line Drive, Varnum's picnic area at 10 a.m. Following a successful inaugural Walk, NAAF sets the bar higher with a goal of raising $900,000 in 2024. The Walk is the finale of Alopecia Areata Awareness Month in September and is the largest alopecia areata awareness and fundraising campaign in the nation. People living with alopecia areata, their families, caregivers, friends, co-workers, and healthcare professionals will rally together in communities across the country on Saturday, September 28th to help drive research for treatments and a cure, increase support, advocate for change, and end stigma.
Losing my hair was like losing a limb, says Deirdre Nero, a Miami attorney who lives with the most severe form of the disease and serves as the chairperson of the National Walk For Alopecia Committee, I would look in the mirror and not recognize who I saw looking back at me. Diagnosed in two percent of the total population of nearly seven million Americans and frequently dismissed as a cosmetic condition, alopecia areata is a chronic autoimmune disease that has a tremendous psychosocial impact. The resulting depression, anxiety, and loss of self-identity increase the demand for services, support, and a cure.
NAAF created the Walk for Alopecia to provide a way for the many millions of people impacted by this common autoimmune disease to do something about alopecia areata, says Nicole Friedland, NAAFs President and CEO, anyone, anywhere can participate and show the world that alopecia areata is not just hair. In 2023, NAAF set an initial goal of raising $400,000 for its first Walk For Alopecia. Thanks to the generosity and enthusiasm of the community, that goal was exceeded by 50% raising a grand total of $620,000, indicative of the desire to indeed do something about alopecia areata.
The alopecia areata community is out in full force led by celebrity Walk Chair, Grammy-winning musician-songwriter Molly Tuttle and CBS News anchor Aziza Shuler. Corporate sponsorship support is generously provided by Pfizer, Sun Pharma, Eli Lilly & Co., RBC Capital Markets, and Sanofi. Those interested in signing up can participate in one of nine events (Austin, Houston, Los Angeles, Minneapolis-St. Paul, New York City, Philadelphia, San Francisco, St. Louis, South Florida/Ft. Lauderdale) or Walk Where You Are in their own community. Visit naaf.org/walk for more information.
About Alopecia Areata
Alopecia areata is a common autoimmune disease affecting nearly seven million Americans that results in unpredictable, often sudden, and severe hair loss. People with alopecia areata most often lose hair in circular, coin-sized patches on the scalp but in more severe cases they may lose all the hair on their body. Alopecia areata can begin at any age, but most develop it early in life, impacting adults and children. More than 80 percent show signs of the disease before age 40, and 40 percent experience symptoms by age 20. Research suggests that women are more likely to develop alopecia areata than men and that the odds of developing alopecia areata are higher among persons of color. Frequently dismissed as a cosmetic condition, alopecia can be a deeply traumatic experience, resulting in emotional and economic pain and social isolation. It is not just hair.
About the National Alopecia Areata Foundation
The National Alopecia Areata Foundation (NAAF) drives research to find a cure and accessible treatments for alopecia areata, supports those impacted, and educates the public about the disease. Founded in 1981, NAAF is the largest alopecia areata patient advocacy organization in the world, connecting members of the alopecia areata community, including those living with the disease, family members and caregivers, healthcare providers, and researchers through its many programs. NAAF is recognized by the Internal Revenue Service as a 501 (c) 3 charitable organization and has achieved the highest rankings from charity watchdogs. For more information, please visit www.naaf.org, email [email protected], or connect with NAAF on Facebook, Instagram, LinkedIn or X.
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Source :National Alopecia Areata Foundation
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